Sunday, December 14, 2008

Autism: It Actually is a Wonderful Life

I will honor Christmas in my heart and try to keep it all the year.
~Dickens

It’s a sunny, crisp, December Sunday, perfect for relaxing on the sofa with a cup of steaming coffee.

Ah, peace.

For me, not to be.

Instead, I’m feeling stressed. Behind.

Harboring a case of holiday hopelessness.

It started earlier this week when I went to book club for the first time in months. (We read American Wife. Thumbs up from me, but I, as usual, digress.) The other book club moms were comparing notes on who was hiding what gifts in whose garage, etc., etc. I took a sip of my Diet Coke and sat in failed silence.

Secret confession: so far I’ve purchased two (count them two) Christmas gifts. Hiding, wrapping and planning are so far beyond me. When the book club moms started talking recipes I knew I was screwed.

Sigh.

But the journey of a thousand miles begins with a single step, right? I determined then and there to at the very least get my act together and get my holiday cards out pronto.

Which leads me to this morning.

Amy and Jack were strategically dressed alike in the red plaid pj’s I ordered online last minute from Gap. I’d also ordered some cool holiday cards from Exposures just screaming for a poignant black and white of my two little elves. Those in receipt of the cards, I envisioned ripping open their envelopes, their mouths agape as they simultaneously teared up upon seeing such an elegantly sweet holiday photo.

With visions of sugarplums dancing in my head, I pulled out my trusty Canon and started shooting.





And shooting.



And shooting.



Reality hit when Jack began to roar and Amy started referring to him as

Fart-face.

Pa rum, pa pum, pum… (Seriously, I hate that song. I really do.)

So yeah, I'll admit it. My gifts aren’t purchased. And correct, I don’t have the perfect stockings- hung-on-the-mantle-angelic-children-beaming-at-the-camera Christmas photo.

And yes, five year-old Jack has peed on the rug twice today. His IEP is tossed on the ottoman, waiting for Andy to review. Amy is currently at Sibshop, hanging out with other sibs of kids with autism. She’ll come home and roll her eyes when I ask her how it went, reminding me that “what’s said in Sibshop stays in Sibshop Mom…”

It’s not the life I expected.

But somehow, on most days, all is calm. And all is bright.

We’re together. We’re safe and warm and dry. We love each other in a comfortable, familiar, quirky sort of way.

There's more than one recipe to a truly wonderful life.

Now forgive me as I dash away…


Fart-face just pooped on the floor.

22 comments:

KK said...

You are not alone in the lack of shopping...I finally went out and bought something to wrap once the boys starting asking why there were no presents under our tree.

Don't stress about the Xmas cards - everyone who loves you already knows how beautiful your family is.

Jenn said...

HAHAH umm each kid is getting one gift as I am taking advantage of the fact neither knows what is going on.

Just pick your favorite photo from the past year of your beautiful kids and use it for the card.

OH Jack and Devin must have mental telepathy going on cause it was poop on the floor here yesterday. He umm also took his diaper off and wiped his butt on my leg. Thank God for long pants.

Judith U. said...

Jenn ... I think your sh*&tuation was worse than mine .. I must admit your comment made me laugh out loud.

And I'm so glad that you Katharine and Jenn are completely slackers like me. We embody the true spirit of Christmas ... or that's what I'm choosing to tell myself.

rhemashope said...

I think the third photo of Jack and Amy in an embrace is perfect and authentic and would make a great holiday card! J, I don't even attempt holiday cards - I can count on one hand the number of photos I have with both children in it where you can actually see both their faces.

I should send you the photo of my foot with poop on it. Yep, she went on my foot and I took a picture of it.

Thanks for making me laugh and keeping it real! =)

Melanie said...

I LOVE reading your blogs!! You make me laugh and cry all at the same time. I'm glad I'm not alone in the picture game. Usually if I take about 30 I might get a good one. And the pee and poop incidents? They get worse every passing week. It is a wonderful life, it's OUR wonderful life!

Will said...

Great Post Judith,

I thought your post was really cute. I hope that you and your family have a great Christmas.

I wanted to drop you a comment because I am trying to raise money for the Autism Action Partnership this Christmas, http://www.autismaction.com/events1.php. We are selling a Velvet Suit Santa Figurine and a sterling silver Four-Heart Pendant. They really are beautiful pieces and each sale benefits the Autism Action Partnership. I was thinking that you might know some moms who would be interested in these gifts/contributions. You can buy the gifts online at
Pendant: http://shop.borsheims.com/Borsheims/ProductDetail.aspx?ProductID=4SVRD0307
Santa:
http://shop.borsheims.com/Borsheims/ProductDetail.aspx?ProductID=6XZZZ0756

Merry Christmas and keep up the good posts,
Will

Jenn said...

Glad I could make you laugh. :-)

Jill said...

HA! I actually thought of sending along a pic of the Ernie figurine wrapped in poop (courtesy of Andrew - almost 4 years old) with our Christmas cards. Nothing like a reality check at the holidays.... Then I decided some of my older relatives might die of shock and I don't want that on my shoulders ;)

I agree the pic of them in an embrace is precioius.

jess said...

There's more than one recipe to a truly wonderful life.

a-friggin-men sister

MarkZ said...

Kevin still has some poop issues.

Great post.

Have a great Christmas.

Judith U. said...

Holy crap, we're not alone! God bless you everyone... :-)

TheFiveDays said...

LOL! I am always so stressed out about gifts that by the time Christmas arrives I am always a mess. So this year for ONCE in my life (seriously, this is the only time ever) I got it done early. I sat down at the computer the day after Thanksgiving and ordered everything except my father-in-law's gift and my husband's. And it has been such a relief.

Now I can just go stress out about everything ELSE!!

I didn't even try to get a group Christmas shot this year...although we did see Santa and I am just amazed nobody is screaming in the shot!!

Oh, and Jacob just peed on the floor in the bathroom RIGHT IN FRONT OF ME about 15 minutes ago. Sigh. At least it wasn't on the carpet.


MERRY CHRISTMAS, JUDITH!!!

Koe Whitton-Williams said...

Beautiful pictures and a loving environment. . . make for an incredible posting to read.

I've bought zero presents. . . but we (Jilly and I) just spent the last hour playing in the foot of snow that's fallen today.

We stick with our small goals and pray that our joyful moments will seem infinitely long.

Drama Mama said...

I love how dear your children are with each other.


It's enough, isn't it??

Laura said...

Hey, quirky love is the best kind.

Oh and on the poop issue, I'm batting like 30% with Brad. He's great if I prompt him, but he doesn't prompt me. So yeah, we've got a little poop situation in our home too.

Nancy Bea Miller said...

Hah! Yeah, Christmas is a bit of a bah humbug maker for many autism moms. So many societal expectations of picture perfect holidays, so many internal pressures, trying to make the holiday nice for our families in despite things like poop on the floor and therapists canceling at the last minute.

I hope your holiday was nice, after all. Cookies and cards and hidden presents do not a Christmas make!

Judith U. said...

"Cookies and cards and hidden presents do not a Christmas make!"

Yes, yes, yes ... I'm repeating that mantra over and over. Printing it out and packing it away with my Christmas decorations so when I pull them out next year I'll remember.

Cookies and cards and hidden presents do not a Christmas make!

Maddy said...

You're right. There is more than one recipe.
Best wishes for a splendiferous 2009

Amber DBTD said...

Beautiful pics ( :

Glad I came across your blog, I'll link to you on my own ( :

Debby said...

I just stumbled across your blog on Facebook. I'm not quite a year into my autism journey, but I can relate in so many ways. I love reading, so please keep writing...

My incoherent rambles are located here: www.everybodysboy.com

Kel&Migs said...

Hey gal!! Where did you go?!? I hope all is well and you are just taking a siesta.

Kel&Migs

tara @ kidz said...

I didn't know whether to laugh or cry! Great post. (found your blog through facebook).